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Not a single bed set aside to treat ME in any UK hospital, says NHS director

Father of Maeve Boothby O’Neill, who died in 2021, says it is ‘shameful’ that health system is unable to treat the disease

A senior NHS professional has told a coroner that there is not a single bed anywhere in the country set aside specifically for the treatment of a patient with severe myalgic encephalomyelitis (ME).

Dr Anthony Hemsley was addressing a special hearing in Exeter after the inquest this summer into the death of Maeve Boothby O’Neill who died in October 2021 at her home in Exeter, at the age of 27, after living with the debilitating disease, also known as chronic fatigue syndrome, for more than a decade.

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